Thursday, February 28, 2008
Using Hand Sanitizer to Prevent Peanut Contamination? Think Again.
If you think that a hand sanitizer, like Purell, can protect you against peanut proteins, think again.
Hand sanitizers shouldn't be used to clean the hands of someone who's just touched peanuts (or other food allergens for that matter). These products are made to kill germs only - they don't wash your hands and they can't always remove allergenic proteins like peanuts or shellfish from your hands.
Just something to keep in mind. Handwashing with soap and water is the best way to remove peanut residue or other food allergens from your hands (or body).
Not that I'm ever touching peanuts, but it's good to keep in mind.
Wednesday, February 27, 2008
Starting a Peanut Allergy Support Group
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I think the wheels might actually be in motion for a SF Bay Area Peanut Allergy support group. It's unbelievable to me that there isn't already a presence.
Want to join us? Email me at peanutfreemamaATgmailDOTcom - we'd love you to join us. Also, if you currently belong to a support group, can you let me know what's working (and what isn't) for your group?
p.s. The closest food allergy support group that I currently know of is in the Sacramento area. Am I wrong? Email me at peanutfreemamaATgmailDOTcom.
Sunday, February 24, 2008
CherryBrook Kitchens Chocolate Chip Cookies
I was in the local upscale grocery near my office (boy I'm in there alot) and I found this mix:Cherrybrook Kitchen Chocolate Chip Cookie Mix
I have heard such good things on the boards about their products, but I always took it with a grain of salt. Did people like it because it was the only thing their child could have, or was it really good?
I thought - what the heck- and tossed it in my cart. They obviously are aware of peanut allergy (look - it says Peanut Free! right on the box in big letters), so I'll give it a shot.
I have to say - this mix could not be easier to make. It was a great activity for an adult and a 3 year old. Just enough mixing and rolling into balls. And there's no eggs, so you can eat the batter without worrying if you are going to get salmonella.
Pop them in the oven and in about 10 minutes they're done. They baked up a little strange though - these are not Tollhouse Cookies mind you - but they come out a nice golden brown. After a minute of cooling, the true test was with Bella, the queen of all dessert (well, at least among the local 3 year old set).
She declared them 'delicious!' and proceeded to eat 3 of them.
The only thing that struck me was that they were a little cakey in texture, and you can definitely tell that you are eating a mock chocolate chip of sorts.
Later on we fed them to my brother, who is a major foodie and he thought they were 'rich' and 'fabulous'. I chuckled a little bit and told my sister in law that I would love to give her the recipe (but I never told her they were from a mix so my secret's still safe). If she only knew :)
But overall, I will definitely be trying more of these mixes in the future. Especially with one of Bella's good pals at daycare having a milk allergy. He'll love these.
Way to go Cherrybrook Kitchen!
Thursday, February 21, 2008
Keep it on the Down Low
And then afterwards I think to myself "Should I have just shared that?"
At what point am I violating her privacy and possibly putting her in danger?
At what point do I stop being the watchdog?
Just wondering.
Wednesday, February 20, 2008
Peanut Allergy Support Group in Bay Area
Can you suggest one?
If not, would you like to start one with me? Email me at peanutfreemamaATgmailDOTcom.
Tuesday, February 19, 2008
Sunbutter: Drumroll please...
I must really be doing my job and getting through to Bella.
I bought a jar of Sunbutter on Friday. After tasting it myself (and finding it oddly enjoyable after being a peanut free household for a few years now), I excitedly made a sandwich for Bella.
She regarded it with skepticism, took a bite, and immediately spit it out. That's my girl!
I've had it the past two days on an english muffin (which is almost like heaven for me - I miss PB on english muffins SO badly) and she's wanted nothing to do with and regards it with disgust.
I guess all the teaching I've been doing regarding what she can have with a peanut allergy has paid off. Now the question is, do I try to make recipes that use peanut butter and replace it with Sunbutter?
Friday, February 15, 2008
Anxiety and Peanut Allergy
Throwing out food. Sanitizing food equipment (or throwing it out altogether). Relearning how to cook for your child (and your family). Avoiding cross contamination. Educating family. Educating school/daycare (sometimes easier than educating family). Asking servers 42 questions. Reading labels. And reading labels. And, oh, did I mention that I read labels?
But most of all, at least for me, the diagnosis came with LOTS of anxiety. For the first 6 months (at least) after Bella's diagnosis, I would be fine during the day, the responsible parent, watchdog for my daughter. Actually I took on a 'no big deal' sort of attitude, hoping folks wouldn't see that I was falling apart when I was alone.
At night, well that was a different story. I would lie awake at night, my husband sleeping soundly, worried to death each night. Nothing would calm me down. And my mind would race.
How was my little girl going to function on a daily basis? What would happen when she got to school and there weren't people really watching out for her? What if she dated a boy who ate peanut butter and then kissed her? Would she encounter bullies at school who would spike her food with nuts? Would she have any friends since she would be the girl with the peanut allergy? Could she go to summer camp? What if she was on a field trip and they fed peanuts to elephants and she stopped breathing and noone knew what to do? What if she's a teenager with an attitude and wont carry her epipen with her and she needs it?
I didn't say they were rational worries. But I would lie there, my heart racing, with tears in my eyes. So worried for my little baby girl. I can't tell you how many hours of sleep I lost.
So what did I do? Well, I wish I could tell you that I pulled myself up by my bootstraps and decided to change my attitude. Thinking back, I really should have seen a therapist to manage these thoughts.
But I didn't.
I just kept putting one foot in front of the other. Devoured posts on peanutallergy.com. Found other bloggers (check out my list at the right). Researched every clinical trial out there. Hell, I even contacted Wesley Burks at Duke and asked him questions (what a great guy by the way)!
And I thanked my lucky stars that Bella wasn't allergic to something NOT on the Top 8 list. I ultimately realized that peanuts are just ONE food. Life could be worse.
But the anxiety still rears it's ugly head now and then. There are days, that I sit at my desk and see my day care's number on caller id and I lose it before I answer the phone. In that split second I think (and this may sound horrible) that she's had a reaction and she's on the way to the hospital. But more likely they are calling to tell me that she bumped her head trying to jump off the slide (she's quite a tomboy), but I always fear the worst :) I worry so much when she's with new people, or if she's with family but they're going out somewhere. But I still let her, even at this young age, go on adventures (that I've researched already, what am I nuts?).
But I can't let my anxiety prevent her from living her life. What kind of parent would that make me? A crazy one, that's what!
When I'm feeling anxious or scared, I go online, and read other people's blogs, and rest assured that I am not alone. That we are all going through it, day by day, to ensure that our babies (however old) are safe.
I can only hope that I can ease the mind of someone out there who's feeling as scared and anxious as I was.
It does get better. Really it does. You'll be fine. So will your baby. Don't worry. Just live.
How do you cope?
Wednesday, February 13, 2008
Preparing for the RAST Test
The first year, she was allergic to peanuts, almonds, and walnuts.
Last year, she was allergic to just peanuts. Whew, no tree nut allergies! Of course, we haven't challenged the tree nuts with an oral challenge in the doctors office, so we're still avoiding them.
So that brings us to this year. Next month, Bella will go in for a RAST (also called the CAP-RAST) test. What exactly is that? I thought you'd never ask! Here's a brief statement from the NIH:
The RAST (Radioallergosorbent test) is a laboratory test performed on blood. It tests for the amount of specific IgE antibodies in the blood which are present if there is a "true" allergic reaction.So basically (I'm not a doctor here), they take your blood and in a lab mix it with allergens to see if your blood reacts. Here's another link to an extensive overview of the RAST test.
Is it "better" than a Skin Prick Test? Not necessarily. As I understand it, both are good indicators of allergy, but for some folks the skin test isn't preferred due to eczema, medication interference, and the risk of exposure to the allergen. But our allergist, who's on the faculty at Stanford Medical School, wants to do it to see the levels in her blood as they react to Peanut. According to the AAAAI, the level of the CAP-RAST test may help predict future food allergy reactions to these foods. I've read lots of differing experiences with this, so I'm on the fence about how much faith to put in the results.
The RAST is very new territory for me, and I'm trying my hardest to understand it, and why it's necessary. But I feel that I should do it - that it's my responsibility as a parent to know just HOW allergic she is. Not that it will make a bit of difference in our diligence in avoiding nuts.
Did any of you decide not to do a RAST even if your doctor ordered one and just stay with a SPT? I'd love to hear from you either in the comments or via email.
And I must admit, I'm VERY nervous about her getting her blood drawn. I've been a blood donor for years, so needles don't bug me, but how do I explain to her that she's getting an 'owie' on purpose? I hope I don't break down in tears in the lab! I'm not sure I want to just surprise her with a blood draw without any notice - it seems a little harsh to me. On the other hand, I don't want her worrying about something that will only take a few minutes and will hopefully be fairly painless for her.
So how I am going to restrain my feisty (and strong) 3 year old? How can I help her in this situation? Bribing with a trip to ToysRUs will definitely happen, that's for sure. But do you all have any other ideas? I'd love to hear them.
Tuesday, February 12, 2008
Join Me on Facebook?
Any ideas for content?
If you're a Facebooker, join me!
Martha Stewart Big Idea Winner?
Just heard through the grapevine that the Allergy Publication and the Pet Publication won the Big Idea Bake off.
Is this true?!? Did anyone watch it?
I wonder how long it will take to come to publication of the first issue?
Monday, February 11, 2008
Can You Eat It?
I haven't really checked it for accuracy, but I am in favor of the concept.
Does anyone know who's behind this?
Sunday, February 10, 2008
Rahul K. Parikh, You Suck.
Why would a doctor even put this out there? Yes, there are folks who over blow their kids food allergies (hello, I know I've talked about the 'milk allergic' kid in Bella's school who still eats cupcakes, right?) but there ARE families with real, life threatening allergies. Instead of brushing them off, maybe he could have kept his mouth shut. His article implies that we should lighten up and not protect our kids.
Maybe he wanted parents to stop stressing out about allergies, that they probably wouldn't happen. If so, he went about it the wrong way. He mentions research at the end of this piece, and then tells his patients to ignore it and actually introduce allergens to kids at one year. What a doctor! I'm glad he's not practicing near me.
Maybe he just wrote this to get attention. He knew it would hit a nerve and he wanted attention. Lots of writers do it. I think Ms. Broussard did that too. That's my opinion at least.
I guess he got it. Can't wait to read the letters to the editor in next week's Chronicle.
Saturday, February 9, 2008
Valentine's Treats for Peanut Allergic Kids
Guess what I found?
Nothing.
There's slim pickings for Peanut Allergic Kids for Valentine's Day! Everything is made on equipment that manufactures peanut products, or made in the same facility - both of those no-no's for the vigilant mom.
So how can you fill a Valentine's Basket with safe treats WITHOUT resorting to mail-order?
Here are some options (most of which you can buy at Target or a drugstore near you):
- Sweethearts in 2 oz boxes (in regular, tart, and chocolate flavors)
- Hershey's Kisses (they even have cute, big heart shaped boxes of them without an allergy warning!)
- Hershey's Chocolate Bars (some of the larger ones have a warning though)
- Twizzlers
- Madeleines from Starbucks
- Rice Krispie Treats
- Mike & Ike's
- Gummi Bears
- Oreo Snack Packs
- Whoppers
- Marshmallow Peeps (as long as they don't have chocolate in them)
- Animal crackers
- Hostess Twinkies or Cupcakes (some have warnings i hear, beware)
- Sweet tarts
- Fruitabu
I must say that not being able to find chocolates and candies is ok with me. I feel a lot better about Bella eating 'real' food like fruit instead of chocolate/sweets for dessert. Is this a bright side of having a peanut allergy? Maybe!
So what would you add to my list?
p.s. Here's a list that details a TON of peanut free/safe foods (note: this list is a year old and originates in Canada, where some products are safe THAT ARE NOT SAFE IN THE USA). NEVER stop reading labels, even if it's a food on this list. Depending on where a product is made (different factory or different country) they could have different manufacturing practices.
Thursday, February 7, 2008
Gung Hay Fat Choy! (may prosperity be with you)
Living in the Bay Area we get to celebrate a multitude of cultures. We're especially lucky to have such a large Chinese population (and great Chinese Food)!
Now we all know that Chinese Food can be a scary encounter for someone with a food allergy - so much of the food contains peanuts. But do you know why? Here's a little something I discovered when I was reading about the Chinese New Year this morning:
Longevity? Not in our house I'm afraid.Dumplings
On New Year's Eve and New Year's Day, it is customary to eat dumplings, known as "jiaozi" in Chinese, which represent the progression of the years. They are filled and then boiled or steamed. In northern China they make "shui-chiao," shaping them like horseshoes, which is meant to bring riches to those who eat them. Plump half-moon shaped dumplings evoke "yuanbao," a 50 ounce silver ingot. Eating them is supposed to bring wealth and good luck.Dumplings can contain a piece of sugar, a coin, a peanut or a chestnut, each signifying a different omen. Did you just bite into a sweet dumpling? Happiness will be knocking at your door. Did it contain a coin? Luck will smile on you. Is it stuffed with a chestnut? You'll soon have a boy. Is it filled with peanuts? That's a sign of longevity (in Chinese, peanuts are also called longevity fruit.)
But we'll be eating Chinese food this week without a doubt (luckily we have a great relationship with a local place who know about our food allergy and accomodate us).
Don't want to head out to Chinese Food? Try to make some yourself to celebrate the year of the rat!
Wednesday, February 6, 2008
Something Fishy?
Did anyone vote today and notice that after you submit, it only says "Thank You for Voting", and not the voting results (in percentages) as it has in past days?
Seems awfully fishy to me.
Something tells me we're getting a pet publication.
~Grumble~
Monday, February 4, 2008
Food Allergy Podcasts?
I listen to ALOT of podcasts (it helps me concentrate while I'm designing at work), and I'm looking to expand my horizons.
I'm trying to find some food allergy-related podcasts and I've only found a couple. If you listen to food allergy podcasts (or others for that matter) and you have some to recommend, leave me a comment!
And just to get a feel for you guys and how familiar you are with podcasts, take the poll I just put up on the sidebar at the right of this post.
Thanks!
Broken Record
Martha Stewart is holding a Big Idea contest on her site to choose the focus of a new publication, and one of the choices is a publication for Allergies and Intolerances. Go vote now so we have another publication (with the backing of a big name like Martha Stewart behind it) out there geared towards our needs as an allergic individual or family members.
Vote today (and often!) Here's the ground rules from her blog:
You can vote as many times as you'd like (once per day) over the next week. On Thursday, February 7, we'll close the poll, and Martha will later announce the big winner!Again, check out her post and vote today. As of this morning, the allergy publication is in the lead, but don't let that stop you from voting. Let's win by a landslide!